Manon Ress manon.ress at cancerunion.org
Mon Jul 30 06:39:03 PDT 2018


UACT Statement on the July 26, 2018 draft of the NCD outcomes document
(Copy here: goo.gl/QHLA6m)

July 30, 2018

Today, for patients, their families and caregivers, it is clear that the
prices of medicines for cancer and other non-communicable diseases are
excessive, and that access to both new and even many older medicines is
both restricted and shockingly unequal. None of these core truths is
reflected in this draft declaration. It is obvious that the United Nations
and the negotiators have been manipulated by the pharmaceutical
manufacturers’ lobby to craft a weak and ineffective resolution that fails
to address the most important challenges in access to medicines. Repeated
references to partnerships with pharmaceutical companies seem designed to
obscure that it is the industry that is the core of the problem. What is
tragically lacking is a clear recognition that medicine prices block
access, create financial distress for patients, and drain resources from
already cash-strapped government health programs.

Negotiators should state the truth about the current crisis in
affordability and access, and then specify and endorse measures that will
begin to address the problems. We have asked the negotiators to follow the
lead of the UN Secretary General’s High Level Panel on Access to Medicine
and propose mechanisms to make R&D costs more transparent, and to explore
new business models for drug development that progressively delink the
incentives for R&D from the prices of treatments. Also, we note that
treatment may be revolutionized for some types of cancer, if recent
advances in cell and gene based treatments scale to additional cancer
indications. The prices of, and access to these new treatments are even
more outrageous and unequal than for new cancer drugs and vaccines, and
none of these issues is adequately reflected in this declaration.

This is a weak declaration that will no doubt appease the biopharmaceutical
industry. But it will not only leave the families of patients heartbroken,
their caregivers disappointed, and many governmental health programs in
financial crisis, it will also ensure that many patients suffer and die

We are appalled.

Manon Ress, Ph.D.
Union for Affordable Cancer Treatment (UACT)
Cell Phone +1 571 331 6879
Email: info at uact.org
Twitter: @Cancer_Union
Telephone: 202.332.2670

Mailing Address:
1621 Connecticut Avenue NW
Suite 550
Washington, DC 20009

More information about the Ip-health mailing list